Expected to die long before now, baby Anaya’s strength and the love of her community have kept her thriving for two miraculous years.
In celebration of her second birthday her family and friends are throwing Baby Anaya’s Birthday Bash, a family event and fundraiser.
The exciting and meaningful event will be on August 26, at Rotary Lakeside Park from 4 to 8 p.m. They will be having a barbecue, live music, children’s entertainment and a fundraising auction both silent and live.
Anaya was diagnosed with Krabbe Leukodystrophy when she was four months old. Krabbe is a demyelinating brain disease. Children with this disease lose their motor skills and ability to smile, laugh, and play, followed by blindness and deafness.
The average life expectancy is 13 months. Thanks to incredible community support and the excellence of care that she has received, Anaya is still thriving and growing.
Although Krabbe disease is rare, there are other children in BC who struggle with the same tragic condition. Krabbe disease is treatable with a stem cell-transplant if the child is tested at birth and treated immediately.
Unfortunately BC doesn’t test a child for Krabbe disease at birth and it is much too late for Anaya to undergo this procedure. What they can do now is continue to provide Anaya with the best life experience possible.
Anaya needs care 24 hours a day. Government sponsored nursing covers eight hours a day while her family cares for her the other 16 hours. The family are her primary care givers and they stay home with her. Currently they are raising money for all of Anaya’s care needs.
Come out to the event August 26. This event will be loads of fun for the whole family.
Some of the auction items include helicopter rides (All Terrain Helicopters), lift tickets and lesson packages (Whitewater), winter cat-ski trips (Baldface Lodge), gourmet gift certificates (Bibo and All Seasons), 52″ Plasma 3D TV (private donation), accommodations packages and more!
Check out healinganaya.com for more details or email firstname.lastname@example.org