The West Kootenay Move to Cure ALS is mobilizing at Trail’s Gyro Park at noon on Sunday, June 4, and the public is invited to participate.
The Move to Cure ALS event is the major fundraiser for the ALS Society of B.C., which brings together family and friends in support of ALS. People come together to “Move,” be it by walking, running, rolling, riding or just being present and showing support.
Last year, the Greater Trail community joined forces in support of Aladina Sheets, who was diagnosed with Amyotrophic Lateral Sclerosis (ALS) in March 2022. The disease has had a big impact on her family, and of course Aladina, and this year, they are again joining the ALS Society of BC in an effort to raise funds, awareness, support and ultimately a cure.
Through the ALS society, the Sheets family has received technological support, as well as home support, and Aladina will soon be getting a personalized powered wheelchair.
One hundred per cent of net proceeds from the Move to Cure ALS go to support patient services programs (60 per cent) and research (40 per cent) through Project Hope.
“We encourage you to not only come out to support everyone’s friend, Aladina, but to also show your support with donations to help research into getting rid of this disease,” said the Sheets family in Aladina’s Move to Cure page.
Supporters are encouraged to wear purple and register at 11 a.m. at Gyro Park; or register and donate online at http://events.alsbc.ca/goto/TeamAladina.
The event starts at noon with welcome speeches and a group photo. At 12:30 p.m. participants will begin to run, walk, ride and roll around Gyro Park for about 30 minutes.
Everyone is encouraged to hang around after, and enjoy live music, a barbeque by donation hosted by Kootenay Savings, and cookies and coffee courtesy of Ferraro Foods. Bounce radio station will also be at the event.
• ALS is a fatal motor neuron disease. It is characterized by progressive degeneration of nerve cells in the spinal cord and brain
• ALS affects voluntary control of arms and legs, and leads to trouble breathing.
• ALS does not affect intelligence, thinking, seeing, or hearing.
• There is no known cure for ALS.
• Treatment of ALS focuses on managing or minimizing symptoms as much as possible.