The gift of getting around

A Nelson woman is grateful for the support of the Variety Club of B.C. in helping provide a special walker for her 2½ year old son.

Todd St. Pierre is getting around using a mobility system purchased with the Variety Club’s help.

A Nelson woman is grateful for the support of the Variety Club of B.C. in helping provide a special walker for her 2½ year old son.

Todd St. Pierre was born with bilateral perisylvian polymicrogyria, a rare genetic disorder that impairs his motor functions.

“It affects more than just his limbs, but his lower limbs are very weak,” says his mother Holly.

“His muscle and his fat tissue is intertwined, so he was very weak at birth.”

Todd isn’t able to stand on his own, but thanks to Kid Walk, a “pediatric mobility system,” purchased with Variety’s help about six months ago, he’s in the process of learning to walk.

“The walker has a bicycle seat he sits on, and then puts pressure when he needs to,” St. Pierre says. “He’s got to push with his arms.

“He loves it. It gets him off the floor. Normally he’s crawling around, but this gets him upright. He sees things from a toddler’s view instead of on the ground all the time. He gets mobile.”

The walker is adjustable, so Todd will be able to continue using it as he grows.

St. Pierre says with the help of Todd’s occupational and physical therapists, she approached Variety to help fund the walker, and they were “gracious enough to get us the money for it.”

The total cost of the walker was $4,543. Variety provided $2,195 while the Ministry of Children and Families funded the rest through its At Home program, which helps parents with the costs of caring for a disabled child.

The Variety Club’s 45th annual telethon goes from 7 p.m. Saturday through 6 p.m. Sunday on Global TV, hosted by the station’s news and weather personalities.

Last year’s show raised $7.4 million for kids with special needs and organizations that support children.

Get local stories you won't find anywhere else right to your inbox.
Sign up here

Just Posted

Interior Health officials outline pandemic response in virtual town hall

Kelowna-Lake County MLA Norm Letnick moderates digital discussion, Q&A with Interior Health leadership

Nelson and COVID-19: everything you need to know

Check this page for every local story related to the outbreak

MP Morrison touts non-partisan effort to provide relief amid COVID-19 pandemic

The federal government has announced a slew of economic initiatives for those impacted by the pandemic

B.C. COVID-19 contact restrictions working, Dr. Bonnie Henry says

’Not out of the woods yet’ as next two weeks are critical

Interior Health to host virtual town hall Friday, March 27

The Q&A forum begins at 6 p.m. PDT, link in story

Trudeau announces 75% wage subsidy for small businesses amid COVID-19

This is up from the previously announced 10 per cent wage subsidy

World update, 9:30 p.m. March 27: Positive news in Korea as U.S. hits 100,000 cases

The United States now has the most coronavirus cases of any country in the world

VIDEO: Penguins roam empty halls of Vancouver Aquarium

COVID-19 has forced the Vancouver Aquarium to close access to guests – leaving room for its residents

Kids get back to learning in B.C., online

Ministry of Education rolls out new tool for school

67 more B.C. COVID-19 cases, two more deaths in Vancouver region

Positive tests found in Surrey, Langley long-term care facilities

‘Now is not the time to bag that peak’: BCSAR manager discourages risky outdoor adventures

Call volumes are not going down, even as the COVID-19 pandemic persists

Food Banks BC already seeing surge in demand due to COVID-19 pandemic

Executive director Laura Lansink said they expect applications will keep increasing

Nanaimo couple caught aboard cruise ship with four dead and COVID-19 present

Four ‘older guests’ have died on Holland America’s Zaandam; cruise line confirms two COVID-19 cases

Frontline workers receiving COVID-19 isolation exemptions prompt concerns

Provincial Health Authority staff exempt from self-isolation upon return from international travel

Most Read