On Lyme disease in Nelson

After watching the Nature of Things program on Lyme disease the other night, I felt it was timely to share our story with the community.

After watching the Nature of Things program on Lyme disease the other night, I felt it was timely to share our story with the community.

A year and a half ago my son came down with a high fever, a red rash on his leg, headache and severe light sensitivity. We went to the hospital, doctors and over the next seven months we saw pediatricians, ophthalmologists, neuro-opthalmologists, neurologists and rheumatologists.

When we asked about Lyme disease we were told “it’s not the right shape rash,” “it’s the wrong time of year,” and my favourite “there’s no Lyme in BC.” They finally ran the Lyme antibody test on him six months after onset and it came back negative.

Health Canada has published a bulletin announcing this test has an error rate between 38 and 68 and yet our BC medical system is using it as a tool to absolutely rule out a Lyme disease diagnosis. See: hc-sc.gc.ca/dhp-mps/alt_formats/pdf/medeff/bulletin/carn-bcei_v22n4-eng.pdf

Thankfully, someone sent us a link to the Canadian Lyme Foundation who directed us to send his blood to an American lab. Through one blood test in the States we able to get a correct diagnosis for not just Lyme, but also babesiosis and bartonella — other diseases that ticks carry (which he wasn’t tested for in Canada).

We returned to Canada with a Lyme diagnosis, testing results and research papers on neurologic Lyme in children and were still denied treatment. Thankfully we were able to pay for treatment and get him better.

Until Lyme disease testing and treatment guidelines are improved in BC there will be more and more undiagnosed cases. The disease can wreak havoc with your whole body and leave you completely disabled. Early diagnosis is so important. Lyme disease is here in Nelson. There are at least a dozen people in Nelson with Lyme that I am aware of. That’s more than one in every 1,000.

Please educate yourselves about this disease so that you are prepared if anyone in your family gets it. I would hate for any other family to go through what we have gone through. See: canlyme.com/lyme-basics

M.J. Jojic, Nelson

Just Posted

Parmedics union raises alarm over spike in out-of-service ambulances

Staffing shortages affecting service levels in Kootenays

Update: Car located in Pend d’Oreille River, teenagers remain missing

A fundraiser has been set up at Kootenay Savings in Fruitvale to help support the family

Award winning documentary to be screened in Nelson

‘The Bikes of Wrath’ will run April 5 and 6 at The Front Room

LETTER: Clean water is a right for First Nations

From readers Sandra Hartline and Keith Wiley

Winlaw Elementary to get new playground

It’s being funded by the provincial government

Five highlights in the 2019 federal budget

Latest budget includes a sprinkling of money for voters across a wide spectrum

Facebook to overhaul ad targeting to prevent discrimination

The company is also paying about $5 million to cover plaintiffs’ legal fees and other costs

B.C. mosque part of open-house effort launched in wake of New Zealand shootings

The ‘Visit a Mosque’ campaign aims to combat Islamophobia

‘That’s a load of crap’: Dog poop conspiracy spreads in White Rock

Allegation picked up steam through a Facebook page run by a city councillor

Explosives unit brought in after suspicious boxes left at B.C. RCMP detachment

Nanaimo RCMP issues all clear after packages were found on lawn earlier in the day

Avalanche control tomorrow on Highway 1

Expect closures of up to two hours east of Revelstoke

Newfoundland man caught after posting photo of himself drinking and driving

The 19-year-old took a photo of himself holding a beer bottle and cigarette while at the wheel

2019 BUDGET: As deficit grows, feds spend on job retraining, home incentives

Stronger economy last year delivered unexpected revenue bump of an extra $27.8 billion over six years

Carfentanil found in 15% of overdose deaths in January: B.C. coroner

Carfentanil is 100 times more powerful than illicit fentanyl and used to tranquilize elephants

Most Read